Getting back on track from Christmas vacation has been more of a feat than ever before. Just something about this Christmas and New Year, I wanted to get through it. I"m not saying I didn't enjoy it, just not as much as in years past. Last week getting in the routine of bedtime (which we basically let go) and getting up at 6:30 (UGH!) was rough on all of us. I believe we have gotten it all back together though!
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Friday was the BMW Charity Pro-Am orientation. We got all of our information from them, then it was off to an Executive Board meeting for Palmetto Hearts. Saturday morning Kaeleigh and Avery had cheerleading and basketball, respectively. Saturday night has become our family movie night. We watched Space Chimps, it was pretty good. The kids enjoyed it for sure! Kaden doesn't have the attention span just yet for it. Sunday we headed over to Monkey Joe's to get together with some of our friends and other heart families, and to raise a little money for Palmetto Hearts. The kids wore themselves out sliding and jumping and running around! Tim and I were exhausted as well. Everyone slept well last night, except for me.
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Kaden had his 6 month cardiologist check up this morning. I haven't slept well in a couple of nights. That's typical though. In the back of my mind, I still have the worry like I did when our heart journey with Kaden began. Kaden was wonderful at the PC (Pediatric Cardiologist) today. He allowed them to take his blood pressure, listen to his heart, and do a full echo. He laid still for around 30 minutes, and our tech was able to get pictures of everything they needed. Heart function is great, and the leakage around his aorta is down-graded from mild to minimal! However, the pulmonary stenosis (narrowing of the arteries that carry oxygenated blood to the lungs) is still at a point where he needs to have a more in depth study done. We are waiting on a call back from Nuclear Medicine (it sounds worse than it is) and we will take Kaden to be sedated and have a dye injected to "light up" his pulmonary arteries on a scan. This lung perfusion test will allow the doctor to see if there is there is blood flow distributed equally between his lungs. If there is any indication of a problem, we'll go back to see Dr. Malpass (his PC) and determine if any intervention is necessary. If so, we'll be headed back to Charleston for a heart cath and a balloon to be inserted to help with the blockage. As with everything, we know that God is in control. Kaden has FAR EXCEEDED any and all expectations from everyone involved with his medical care! We will continue to rely on God's blessing of health and healing for our little guy!
He who dwells in the shelter of the Most High will rest in the shadow of the Almighty. I will say of the LORD, "He is my refuge and my fortress, my God, in whom I trust." Psalm 91:1-2
2 comments:
sara -
you know my prayers are with KJW and you. as a mommy, we seem to worry way more than we should, but it's just how we are built. God knew this need LONG before it even occurred. He's like that!
Praying always ---- and many hugs!
SARA..SONNY AND I WILL BE PRAYING FOR KADEN..WE KNOW THAT GOD IS CONTROL OF OUR EVERY STEP..AND HE HAS HIS HAND ON KADEN. WE ARE PRAYING AND BELIEVING THAT ALL WILL BE WELL WHEN HE HAS THE OTHER TEST..PLEASE LET US KNOW!! LOVE YOU!
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